Where We Live: Living With Cystic Fibrosis

about 30,000 Americans live with Cystic Fibrosis

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Connor Aylward
Photo:Jan Aylward
Brian Sercus and Lilly
Photo:Catie Talarski
Mary Elizabeth Peters
Photo:Catie Talarski
Where We Live: Living With Cystic Fibrosis
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Beth Peters Poem, "Breath"
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Where We Live: Living With Cystic Fibrosis
Beth Peters Poem, "Breath"

You're a 16 year old kid, and your body's giving out on you.  You need a liver transplant because of complications from cystic fibrosis.  And you need it before the disease saps more strength from your lungs.

Now, you're a 29 year old.  You've lived your life with lungs that can't handle the drowning effects of the sticky mucus your body produces.  You have to decide - "do I want a lung transplant?" - even though that procedure isn't guaranteed to make your life better, or longer.

Cystic Fibrosis is not a common disease - only about 30 thousand Americans live with it - but it's a disease that people are living longer with.  And that makes for tough decisions for both them and their families.

Today, where we live, the story of a desperately needed transplant for a teenager at Yale New Haven hospital,  we'll meet two young adults using blogs to reach out to others with their disease, and the researcher whose daring attempt to grow new lung tissue gives some hope to those fighting Cystic Fibrosis.


  

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